How I spent the weekend - corneal/epithelial erosion

[skysidhe]

Originally Posted by dar512

Some folks say that God only gives you trials you can handle. If that's true, then God thinks I'm a friggen hero. Not one, but two incurable illnesses. In addition to having Crohn's disease, I also have Cogan's dystrophy - also known as Map Dot Fingerprint dystrophy (for what the cornea ends up looking like).

Descriptions of Cogan's say, "In some cases, epithelial erosion may occur. Epithelial erosion can expose the nerves lining the cornea, causing severe pain."

Let me tell you "severe pain" does not cover it.

I know I'm whining. Neither of these diseases is likely to kill me. Though for both diseases doctors have told me, "There will be times when you might wish it would."

Did the Dr. give you anything to relieve the pain in your eye?

My sister has a nerve dystrophy so I understand how painful this could become.

Is the Epithelial erosion far advanced? or was that the Dr's prognosis that it will in fact erode that far? or has it?

I suppose asking so many questions isn't going to help much but I do have heartfelt sympathy for it.

[dar512]

Originally Posted by skysidhe

Did the Dr. give you anything to relieve the pain in your eye?

My sister has a nerve dystrophy so I understand how painful this could become.

Is the Epithelial erosion far advanced? or was that the Dr's prognosis that it will in fact erode that far? or has it?

I suppose asking so many questions isn't going to help much but I do have heartfelt sympathy for it.

In Cogan's dystrophy, the bottom layer of epithelium cells are thick and uneven. This means all the layers above don't attach properly. When it goes, everything above tears off in hunks. The doctor I saw in the ER recommends a corneal scrape. This does not sound like a whole lotta fun. We'll see what the regular specialist says next week.