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The biggest problem to being an informed patient is that there is a huge lack of information out there. If you do find a book at the bookstore or local library, it will only be about one aspect that may cause 15% of the less than 50% not caused by chromosomal issues. I am really searching for something that shows the broader possible causes, and what steps are taken to identity that this may be the problem. I want to know what to ask my dr. to look for with me, and have yet to find a comprehensive and informative source.
I appreciate all the responses so far, the Cellar is full of caring and compassionate people and so when I exhausted my local resources, I knew I could turn here for other perspectives.
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