My friend recovering from breast cancer

monster • Oct 26, 2009 9:27 pm
This is a continuation of the other thread but I really needed a fresh start because -no offence intended- that had become a little maudlin and about losing the fight and this is my place for letting off steam about my friend's fight and I very much don't want to think about the death possibility even though of course it's always there in the back of my mind.....

Anyhoo. It's been praying on my mind today because she had her first post-surgery visit with her oncologist. We were all apprehensive because the pathogy on the removed lymph nodes showed cancer in 7 of them. Post-chemo. This would sound scary anyway, but when the surgeon's right-hand-bitch-with-absolutely-no-fucking-people-skillz called the day after the surgery she said "we found cancer in 7 nodes, but don't jump ship yet" WTF is that supposed to mean if not "you're fucked, panic now"?

I emailed my friend this evening and she said

"Today was not the horror show I feared it was going to be. The radiologist actually never showed up--after 2 1/2 hours!--but we got to spend an hour with the chemo dr and ask a million questions about the pathology report. it's a big blah blah fest all the info I have running around in my head that I could relate...so I'll just tell you when we walk tomorrow"

So I'm still not a whole lot wiser but it sounds like they feel there is still light at the end of the tunnel -and not the type you have to "go towards" ;), even if it might be a long and bumpy passage.

I hate it though.

On the plus side, she's 3 weeks post surgery, 6 weeks post-chemo, has about 1cm of hair, is able to do yoga and our walking pace and distance is increasing every day. Also she can drive a little.

This is her first week without her doula -now I feel I need to explain that one! Apparently some doulas don't just work with pregnant/postpartum women. This one came every day the first week, every other day the two weeks after that, and help her with the dressings and the drains, but also with showering, getting dressed, gentle massage, light household chores and general reassurance about all stuff medical that she felt not important enough to ask the doctors about. If you are reading this because you are or know someone getting a mastectomy and you can afford it, get a doula. If that is not financially possible, this is the type of help to ask your best friend and your network of supporters for (particularly if any of them have medical backgrounds). Meals are nice. loading the dishwasher is also nice and loading the washing machine is essential. Sure, BC sufferers can ask their family to do this, but I think it's helping my friend's kids that they don't have a shitload of extra chores on top of dealing with the "mommy may die" stuff, and it's certainly helping her that she doesn't have to fight with them/nag them about it..
classicman • Oct 26, 2009 10:24 pm
Thats great to hear monnie - you gotta keep the faith. Its gotten me through a lotta hell lately.
monster • Oct 26, 2009 10:27 pm
I meant preying, not praying, but you know what I mean :lol:

Thanks cm, I know what you mean too. :)
limey • Oct 27, 2009 9:03 am
Glad to hear that you're keeping things positive. It's always good, also, to get a reminder of the simple, practical ways people can help.
monster • Oct 27, 2009 4:24 pm
OK, so the news is not so bad in that they already knew the tumor was reactive to hormones so they didn't expect the chemo to completely wipe out the cancer, although it would have been nice if it did :rolleyes:..... on with the radiation and hormone therapy....
monster • Oct 30, 2009 11:25 pm
So, the radiation initiation visitation.

My friend is dreading this as much as she did chemo and surgery (i.e. LOTS), but i'm not really sure why.... compared to those two it's a walk in the park ..I guess my next job is to convey that to her....

Anyway, her husband was unable to attend the initial meeting with the radiologist and her team, so yesterday she asked if I would come. I'm glad she did.... and I'm glad that I felt like a spare part.... She gets horribly nervous and "British" around doctors and needs an advocate with her.

I found this out when I took her to the emergency appt about her odema/swelling/?spelling/bite-me-nazis-its-friday-night and she didn't ask the questions she wanted to about what was worrying her (so i did)

But today I was all ready to do the same and didn't need to -she did great
classicman • Oct 31, 2009 7:20 pm
Thats awesome on so many levels!
monster • Oct 31, 2009 9:32 pm
it is. I was hoping she'd make it over here tonight to see the decorations, but she didn't -evenings are the worst for pain and movement, though, and she saw them last year.
Perry Winkle • Nov 1, 2009 10:12 am
monster;604679 wrote:
odema/swelling/?spelling/bite-me-nazis-its-friday-night


Just for the sake of knowing, no Nazism intended: Edema.
Trilby • Nov 1, 2009 11:05 am
radiation is weird. It made me so horribly tired and I didn't put the two together for a long time (radiation=tiredness) because it wasn't as physically devestating as the chemo.
monster • Nov 1, 2009 11:52 am
Fatigue is the main side-effect they mention, and it's supposed to be particularly bad for patients who have already been through chemo.

BTW, Bri, can't tell you how much your posting here about your fight has helped me help her. Here's hoping for good news with your current battle.
Trilby • Nov 1, 2009 2:12 pm
monster;604929 wrote:
BTW, Bri, can't tell you how much your posting here about your fight has helped me help her. Here's hoping for good news with your current battle.


:) I am so glad to be of some use! I think of your friend often - I remember how lonely I felt going thru it.
monster • Nov 1, 2009 6:50 pm
Perry Winkle;604911 wrote:
Just for the sake of knowing, no Nazism intended: Edema.


thanks. actually I still use the brit oedema but it looked like too many Es :lol:
DanaC • Nov 1, 2009 6:54 pm
Monnie beat me to it: I was going to say over here it's spelt with an O.
monster • Nov 9, 2009 2:31 pm
So, radiation initialization/rehearsal this week. plus she just joined a clinical trial of something (name completely escapres me right now) that increase bone strength and health and reduces the risk of cancer returning. Already approved in Europe, testing is in it's final stages here. unfortunately, she's in the infusion branch of the study which is the most bothersome and the first one on Thursday gave her horrible side effects.

But on the happy happy side, she has about an inch of hair and very noticeable eyebrows :D
monster • Nov 18, 2009 9:35 am
First radiation treatment went OK yesterday. Will be done by Dec 23rd if all goes to plan.

Eyelashes are back already!
limey • Nov 18, 2009 12:49 pm
Woo Hoo!!!
Pie • Nov 18, 2009 1:52 pm
Quite a Yule present. Good luck to her (and to you, monnie!)
monster • Dec 22, 2009 7:59 am
Penultimate radiation today, RFN in fact -meeting her afterwards for our daily walk. She's doing great!
limey • Dec 22, 2009 8:35 am
Good news and Christmas cheer!
classicman • Dec 22, 2009 1:55 pm
Outstanding!

oh and Fuck Cancer! :)
classicman • May 21, 2010 9:42 am
Any update monster?
monster • May 21, 2010 9:49 am
Well the long term hormone treatment she was on and wanted to be on failed because her ovaries kicked back into action, so now she's on the regular Tamoxifen which is causing her lymphodema problems. But she's doing well and has a cool new car :D

It's just a case of wait and see now. You're never free once you've been tagged, so you just do what you can with the freedom you've got.

thanks for asking.
classicman • May 21, 2010 9:52 am
Glad to hear it. Just needed to hear a lil something positive. Lost touch with an old friend and reached out today to find out I was too late. :'(
Trilby • May 25, 2010 8:52 am
Hey! She got a cool new car?! Awesome!

I'm having surgery thursday for "complications" of my chemo/cancer crap. In and out - no overnight. Chemo really screws with the body.
classicman • May 25, 2010 9:26 am
Good luck Bri - Hope it all works out for you.
Trilby • May 25, 2010 9:48 am
thanks. Once you've had the big C, they just keep picking at you.
monster • May 25, 2010 11:32 am
Ugh, Bri. Good Luck
limey • May 26, 2010 12:23 pm
Good luck, Bri!
Shawnee123 • May 26, 2010 12:25 pm
Oh, hey...hope all goes well for you tomorrow Bri.

Fuck Cancer.
dmg1969 • May 26, 2010 1:26 pm
Good luck, Brianna!
monster • May 26, 2010 2:00 pm
You know, though, fucking is best when done with someone you like.

Castrate Cancer!
Shawnee123 • May 26, 2010 2:02 pm
Cut off cancer's balls and stuff them down cancer's throat!
monster • May 26, 2010 2:03 pm
I'm not buttfucking no cancer in the mouth, tho'
Shawnee123 • May 26, 2010 2:04 pm
:headshake

No, cancer will have to buttfuck its own mouth.
monster • May 26, 2010 2:16 pm
Maybe cholesterol could BFCitM? Two birds with one stone, so to speak....
Trilby • May 26, 2010 3:05 pm
tomorrow! I hope they give me a leeeeettle chip of a quaalude afterwards. That would be nice. :)

they prolly won;t, though. dammit.
monster • May 26, 2010 8:07 pm
Do you have to have a general anaesthetic?
Trilby • May 27, 2010 5:47 am
monster;658651 wrote:
Do you have to have a general anaesthetic?


yeah. I go in at 11:00 this morning. I've been reading about this procedure and I'm getting wildly differing opinons on the post-surgical pain. We shall see.
Pie • May 27, 2010 10:44 am
Crossing my fingers (and eyes) for you, lady!
Shawnee123 • May 27, 2010 11:19 am
Me too. Thinking of you right this minute!

Keep us posted.
Trilby • May 28, 2010 8:58 am
* I'm sorry - I didn't mean to hijack monnie's thread!*

I'm back at home and doing well. thanks all!
Shawnee123 • May 28, 2010 9:31 am
I bet monster doesn't mind. :)

Glad you're OK! :jig:
classicman • May 28, 2010 11:32 am
Excellent - glad to hear it Bri
monster • May 28, 2010 9:48 pm
No, I only mind if you die in my thread ;) Or call me monnie :p: