Essential Tremors Disease. - Page 2

Clodfobble · 10-21-2015, 11:19 AM

Quote:

Originally Posted by busterb

After searching various spellings of a drug name my Dr. scratched down, I came up with Topamax.
If that's correct, no way. Link is to FDA .pdf.

Is it the potential side effects that worry you? (I ask this as someone who takes an anticonvulsant and loves it, so I admit I am probably biased.)

busterb · 10-21-2015, 05:51 PM

Quote:

Originally Posted by Clodfobble

Is it the potential side effects that worry you? (I ask this as someone who takes an anticonvulsant and loves it, so I admit I am probably biased.)

Yes. I have glaucoma, copd. And so far I think I still have my liver. I mailed her a letter today. Guess we'll talk it over soon. Still waiting on my labs.

busterb · 10-25-2015, 07:36 AM

Dr. ***** reviewed my labs and wrote, "All are within normal limits, stable, or acceptable for you."
She gave me Flomax for enlarged prostrate.
She didn't test my thyroid. Here's what I had given her in my notes.
"Thyroid is better, not cold as much. Still have split nails, which is hard on nose and runs in stockings."

Undertoad · 10-25-2015, 08:26 AM

busterb · 12-16-2015, 08:48 PM

I saw a neurologist on the 8th and they are going to give me one of the spoons that Bigv posted. Guess what meds she is sending me? Yep the same one I refused from my Dr. TOPIRAMATE. Ain't life grand?

orthodoc · 12-17-2015, 06:13 AM

That spoon looks like a fantastic product. I hope it works well for you, bb. As for the Topamax, can you talk over your concerns with your doc? Maybe she'd be willing to try a different medication.

Griff · 12-17-2015, 06:14 AM

Are you going to take it or are you still on the fence about it?

busterb · 12-17-2015, 05:37 PM

Well it hasn't came yet, so I'll try to talk to someone.

Clodfobble · 12-17-2015, 09:22 PM

I got my uncle one of those spoons. He likes it (insofar as it is possible for him to like anything that reminds him he has Parkinson's.)

xoxoxoBruce · 12-17-2015, 10:00 PM

Be patience buster, everything is moving slowly. I just found out my shark that shoots laser beams won't be here until Wednesday.

BigV · 12-17-2015, 11:02 PM

frickin' lasers

Buster, I wish you the best, man. I like you and it kind of pisses me off to hear your tales of the bullshit you have to go through. I wish there was something I could do to help.

Big Sarge · 12-18-2015, 05:32 AM

Hey BusterB. The VA first time around tried to diagnose me with essential tremors, but it ended up being the neurological damage. Anyway the treatment is the same - beta blockers. I and most of the guys with the same issues I know with the problem get Toprol 3 times a day.

Don't let the VA fuck you over!! I'm using my Medicare and Tricare for Life to stay out of VA hell as much as I can

fargon · 12-18-2015, 05:35 AM

I'm having good luck with the VA. But that could change at any minute.

busterb · 12-18-2015, 07:01 PM

The meds came today, but on hold till the retina Dr. replies to my IM. The spoon, I have to go to va for it. Maybe more than one weight? Also got 90 tabs of Guaifenesin, just got them 10 days ago. So wtf is someone thinking? I'm eating them for snacks.

busterb · 12-18-2015, 09:01 PM

A friend asked me to take a ride yesterday, said would buy lunch. So we did. I had a side of coleslaw. He ask, any good. Well what little I could keep on the fork isn't bad.

That's why I don't eat out much. Also I'm out of touch with the cost of things.

10-25-2015, 07:36 AM	#18
busterb NSABFD Join Date: Jul 2004 Location: MS. usa Posts: 3,908	Dr. ***** reviewed my labs and wrote, "All are within normal limits, stable, or acceptable for you." She gave me Flomax for enlarged prostrate. She didn't test my thyroid. Here's what I had given her in my notes. "Thyroid is better, not cold as much. Still have split nails, which is hard on nose and runs in stockings." __________________ I've haven't left very deep footprints in the sands of time. But, boy I've left a bunch.

12-16-2015, 08:48 PM	#20
busterb NSABFD Join Date: Jul 2004 Location: MS. usa Posts: 3,908	I saw a neurologist on the 8th and they are going to give me one of the spoons that Bigv posted. Guess what meds she is sending me? Yep the same one I refused from my Dr. TOPIRAMATE. Ain't life grand? __________________ I've haven't left very deep footprints in the sands of time. But, boy I've left a bunch.

12-17-2015, 06:13 AM	#21
orthodoc Not Suspicious, Merely Canadian Join Date: Oct 2006 Posts: 3,774	That spoon looks like a fantastic product. I hope it works well for you, bb. As for the Topamax, can you talk over your concerns with your doc? Maybe she'd be willing to try a different medication. __________________ The greatness of a nation and its moral progress can be judged by the way its animals are treated. - Ghandi

12-17-2015, 06:14 AM	#22
Griff still says videotape Join Date: Feb 2001 Posts: 26,813	Are you going to take it or are you still on the fence about it? __________________ If you would only recognize that life is hard, things would be so much easier for you. - Louis D. Brandeis

12-17-2015, 05:37 PM	#23
busterb NSABFD Join Date: Jul 2004 Location: MS. usa Posts: 3,908	Well it hasn't came yet, so I'll try to talk to someone. __________________ I've haven't left very deep footprints in the sands of time. But, boy I've left a bunch.

10-25-2015, 08:26 AM	#19
Undertoad Radical Centrist Join Date: Jan 2001 Location: Cottage of Prussia Posts: 31,423

12-17-2015, 09:22 PM	#24
Clodfobble UNDER CONDITIONAL MITIGATION Join Date: Mar 2004 Location: Austin, TX Posts: 20,012	I got my uncle one of those spoons. He likes it (insofar as it is possible for him to like anything that reminds him he has Parkinson's.) __________________ My book My other book My spirit animal

12-17-2015, 10:00 PM	#25
xoxoxoBruce The future is unwritten Join Date: Oct 2002 Posts: 71,105	Be patience buster, everything is moving slowly. I just found out my shark that shoots laser beams won't be here until Wednesday. __________________ The descent of man ~ Nixon, Friedman, Reagan, Trump.

12-17-2015, 11:02 PM	#26
BigV Goon Squad Leader Join Date: Nov 2004 Location: Seattle Posts: 27,063	frickin' lasers Buster, I wish you the best, man. I like you and it kind of pisses me off to hear your tales of the bullshit you have to go through. I wish there was something I could do to help. __________________ Be Just and Fear Not.

12-18-2015, 05:32 AM	#27
Big Sarge Werepandas - lurking in your shadows Join Date: Jun 2008 Location: In the Deep South Posts: 3,408	Hey BusterB. The VA first time around tried to diagnose me with essential tremors, but it ended up being the neurological damage. Anyway the treatment is the same - beta blockers. I and most of the guys with the same issues I know with the problem get Toprol 3 times a day. Don't let the VA fuck you over!! I'm using my Medicare and Tricare for Life to stay out of VA hell as much as I can __________________ Give a man a match, & he'll be warm for 20 seconds. But toss that man a white phosphorus grenade and he'll be warm for the rest of his life.

12-18-2015, 05:35 AM	#28
fargon Person who doesn't update the user title Join Date: Dec 2005 Location: La Crosse, WI Posts: 8,924	I'm having good luck with the VA. But that could change at any minute. __________________ Annoy the ones that ignore you!!! I live a blessed life I Love my Country, I Fear the Government!!! Heavily medicated for the good of mankind.

12-18-2015, 07:01 PM	#29
busterb NSABFD Join Date: Jul 2004 Location: MS. usa Posts: 3,908	The meds came today, but on hold till the retina Dr. replies to my IM. The spoon, I have to go to va for it. Maybe more than one weight? Also got 90 tabs of Guaifenesin, just got them 10 days ago. So wtf is someone thinking? I'm eating them for snacks. __________________ I've haven't left very deep footprints in the sands of time. But, boy I've left a bunch.

12-18-2015, 09:01 PM	#30
busterb NSABFD Join Date: Jul 2004 Location: MS. usa Posts: 3,908	A friend asked me to take a ride yesterday, said would buy lunch. So we did. I had a side of coleslaw. He ask, any good. Well what little I could keep on the fork isn't bad. That's why I don't eat out much. Also I'm out of touch with the cost of things. __________________ I've haven't left very deep footprints in the sands of time. But, boy I've left a bunch.

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