My Kid is a Damn Nutter - Page 54

Clodfobble · 05-17-2011, 11:00 PM

Warning: graphic medical photos to follow. I realize it's not something everyone wants to see, but I find stuff like this compelling rather than revolting, so proceed at your lunch's own risk.

Scope Day went extremely well. Both kids went into their procedures without protest (they were honestly too lethargic and lacking in calories to have done much about it) and woke up from the anesthesia calmly. Minifobette was knocked on her ass by the whole thing, and slept on the living room floor for the majority of the day after I brought her home. But Minifob recovered within an hour of waking, and had a great time playing minigolf and videogames with Mr. Clod until his sister's box accumulated its 8 hours' worth of photos and shut off, enabling him to come home. Both kids ate a small amount of dinner (and kept it down--they'd both had some problems with vomiting earlier in the day,) and I drove back to the doctor's office to return the receiver boxes after putting them to bed. Neither one has passed their pill cam yet though, which is disappointing because this probably means they'll drop them at school/therapy tomorrow, and maybe this is weird but I kind of want to save them as a souvenir. Cleaned, of course.

Anyway, initial results from the visual scopes were reported to us, though biopsies and pill cam data won't be compiled and reviewed for another couple of weeks. Surprisingly, Minifobette showed no damage to her colon, but the doctor told us that's often the case with the very youngest children who are already being treated with diet; the disease's progression is held at least somewhat in check. The small intestine is where the problem always originates, which is why the pill cam procedure is so important. She's still got some 20 feet of digestive tract to be examined, compared to the roughly 4 feet that can be seen with a traditional scope.

But the boy, he has a good amount of colon damage, in addition to what we're waiting to find in the small intestine. It's not 100% awful from stem to stern, but there's a large section that truly ain't pretty. They gave us printouts of all the captured images before we left the surgery center. See below.

monster · 05-18-2011, 04:47 PM

Quote:

Originally Posted by Clodfobble

this probably means they'll drop them at school/therapy tomorrow, and maybe this is weird but I kind of want to save them as a souvenir. Cleaned, of course..

Can't you lie and say you have to keep them so please have them poop in potties and save it?

ok, maybe not....

footfootfoot · 05-17-2011, 11:31 PM

Wow. That's vindication for you. I'm guessing it must be (yet again) a hard thing for you. My thoughts are with you all. What kind of healing/recovery can be expected?

Clodfobble · 05-17-2011, 11:41 PM

It did stab me in the chest a little to see just how bad it is, though I'm told it could be much worse. But with the right combination of steroids and anti-inflammatories, along with his continued restricted diet and supplements, I'm told that it's expected to go into full remission. The main hurdle was finding a doctor who wouldn't just pretend it didn't exist, so it that regard we're on the far side of the mountain and it only gets better from here.

xoxoxoBruce · 05-19-2011, 11:51 PM

Quote:

Originally Posted by Clodfobble

The main hurdle was finding a doctor who wouldn't just pretend it didn't exist,...

That's infuriating.

morethanpretty · 05-29-2011, 07:36 PM

Quote:

Originally Posted by Clodfobble

It did stab me in the chest a little to see just how bad it is, though I'm told it could be much worse. But with the right combination of steroids and anti-inflammatories, along with his continued restricted diet and supplements, I'm told that it's expected to go into full remission. The main hurdle was finding a doctor who wouldn't just pretend it didn't exist, so it that regard we're on the far side of the mountain and it only gets better from here.

It sucks that y'all have to go through all of this, but it is a relief to know I bet. And hey! Full remission has that good of a possibility?! Fucking awesome!

footfootfoot · 05-17-2011, 11:46 PM

That is great news, you can focus your energies on healing, not squandering them on battling with docs.

limey · 05-18-2011, 07:18 AM

Quote:

Originally Posted by Clodfobble

... it only gets better from here.

Quote:

Originally Posted by footfootfoot

That is great news, you can focus your energies on healing, not squandering them on battling with docs.

Amen to all this. Hugs to you Clod, and your family.

glatt · 05-18-2011, 08:15 AM

Sorry that you were right about the boy. But glad too, that it's been so clearly identified.

I can't speak for anyone else, but I love pictures like this. If you get any shots from the pill cam, I'd be interested to see those too.

Spexxvet · 05-18-2011, 10:34 AM

Quote:

Originally Posted by glatt

I can't speak for anyone else, but I love pictures like this. If you get any shots from the pill cam, I'd be interested to see those too.

Same here.

Wow, Clod! The bad part looks as if it's blistered. I wonder if the reaction is similar to poison ivy.

Pete Zicato · 05-18-2011, 11:54 AM

I can't tell you how sad I am to see that picture, Clod. What part of the intestine was that?

Clodfobble · 05-18-2011, 12:46 PM

The paperwork says terminal ileum.

Pete Zicato · 05-18-2011, 02:25 PM

The terminal ileum is the last part of the small intestine where it meets with the large intestine. I'm sure there are other things this might be (Celiac inflammation?), but that is a common place for Crohn's disease to hang out.

footfootfoot · 05-18-2011, 02:19 PM

That's the place, not the diagnosis.

skysidhe · 05-18-2011, 02:31 PM

NOW at least you can proceed with assurance and with a course of action.

05-17-2011, 11:00 PM	#1
Clodfobble UNDER CONDITIONAL MITIGATION Join Date: Mar 2004 Location: Austin, TX Posts: 20,012	Warning: graphic medical photos to follow. I realize it's not something everyone wants to see, but I find stuff like this compelling rather than revolting, so proceed at your lunch's own risk. Scope Day went extremely well. Both kids went into their procedures without protest (they were honestly too lethargic and lacking in calories to have done much about it) and woke up from the anesthesia calmly. Minifobette was knocked on her ass by the whole thing, and slept on the living room floor for the majority of the day after I brought her home. But Minifob recovered within an hour of waking, and had a great time playing minigolf and videogames with Mr. Clod until his sister's box accumulated its 8 hours' worth of photos and shut off, enabling him to come home. Both kids ate a small amount of dinner (and kept it down--they'd both had some problems with vomiting earlier in the day,) and I drove back to the doctor's office to return the receiver boxes after putting them to bed. Neither one has passed their pill cam yet though, which is disappointing because this probably means they'll drop them at school/therapy tomorrow, and maybe this is weird but I kind of want to save them as a souvenir. Cleaned, of course. Anyway, initial results from the visual scopes were reported to us, though biopsies and pill cam data won't be compiled and reviewed for another couple of weeks. Surprisingly, Minifobette showed no damage to her colon, but the doctor told us that's often the case with the very youngest children who are already being treated with diet; the disease's progression is held at least somewhat in check. The small intestine is where the problem always originates, which is why the pill cam procedure is so important. She's still got some 20 feet of digestive tract to be examined, compared to the roughly 4 feet that can be seen with a traditional scope. But the boy, he has a good amount of colon damage, in addition to what we're waiting to find in the small intestine. It's not 100% awful from stem to stern, but there's a large section that truly ain't pretty. They gave us printouts of all the captured images before we left the surgery center. See below. Attached Images __________________ My book My other book My spirit animal

05-17-2011, 11:31 PM	#3
footfootfoot To shreds, you say? Join Date: Aug 2004 Location: in the house and on the street-how many, many feet we meet! Posts: 18,449	Wow. That's vindication for you. I'm guessing it must be (yet again) a hard thing for you. My thoughts are with you all. What kind of healing/recovery can be expected? __________________ The internet is a hateful stew of vomit you can never take completely seriously. - Her Fobs

05-17-2011, 11:41 PM	#4
Clodfobble UNDER CONDITIONAL MITIGATION Join Date: Mar 2004 Location: Austin, TX Posts: 20,012	It did stab me in the chest a little to see just how bad it is, though I'm told it could be much worse. But with the right combination of steroids and anti-inflammatories, along with his continued restricted diet and supplements, I'm told that it's expected to go into full remission. The main hurdle was finding a doctor who wouldn't just pretend it didn't exist, so it that regard we're on the far side of the mountain and it only gets better from here. __________________ My book My other book My spirit animal

05-17-2011, 11:46 PM	#7
footfootfoot To shreds, you say? Join Date: Aug 2004 Location: in the house and on the street-how many, many feet we meet! Posts: 18,449	That is great news, you can focus your energies on healing, not squandering them on battling with docs. __________________ The internet is a hateful stew of vomit you can never take completely seriously. - Her Fobs

05-18-2011, 11:54 AM	#11
Pete Zicato Turns out my CRS is a symptom of TMB. Join Date: Jan 2010 Location: Chicago suburbs Posts: 2,916	I can't tell you how sad I am to see that picture, Clod. What part of the intestine was that? __________________ Talk nerdy to me.

05-18-2011, 08:15 AM	#9
glatt ™ Join Date: Jul 2003 Location: Arlington, VA Posts: 27,717	Sorry that you were right about the boy. But glad too, that it's been so clearly identified. I can't speak for anyone else, but I love pictures like this. If you get any shots from the pill cam, I'd be interested to see those too.

05-18-2011, 12:46 PM	#12
Clodfobble UNDER CONDITIONAL MITIGATION Join Date: Mar 2004 Location: Austin, TX Posts: 20,012	The paperwork says terminal ileum. __________________ My book My other book My spirit animal

05-18-2011, 02:25 PM	#13
Pete Zicato Turns out my CRS is a symptom of TMB. Join Date: Jan 2010 Location: Chicago suburbs Posts: 2,916	The terminal ileum is the last part of the small intestine where it meets with the large intestine. I'm sure there are other things this might be (Celiac inflammation?), but that is a common place for Crohn's disease to hang out. __________________ Talk nerdy to me.

05-18-2011, 02:19 PM	#14
footfootfoot To shreds, you say? Join Date: Aug 2004 Location: in the house and on the street-how many, many feet we meet! Posts: 18,449	That's the place, not the diagnosis. __________________ The internet is a hateful stew of vomit you can never take completely seriously. - Her Fobs

05-18-2011, 02:31 PM	#15
skysidhe ~~Life is either a daring adventure or nothing.~~ Join Date: Apr 2006 Posts: 6,828	NOW at least you can proceed with assurance and with a course of action.

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