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03-19-2009, 05:41 PM | #1 |
Touring the facilities
Join Date: Nov 2002
Location: The plains of Colorado
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I am sorry you are feeling down, Clod. I don't truly know what it is to cope with this kind of situation, but I can imagine it would be something I would not easily cope with. You are doing magnificent, however. Your dedication and strength in this difficult time are showing through even just in your text. Don't give up. Your little boy is a lucky, lucky kid, you know. And you will get through this. Maybe it feels like your patience is beyond repair or that you just can't take another day. If so, remember that every day...every moment is fresh. Take a few minutes every day to just breathe. Take some time for you...do something special for yourself, if you can. Feel free to use PM if you need someone to talk to. I can relate to the step kids coming for the summer. We also have my husband's children in the summers and it can be taxing for everyone involved, trying to adjust to the differences in households, trying to recalibrate everyone's understanding of how we do things in our house, etc. And I am available to watch the kids, yet, it is usually a stressful ordeal. Last year I put together a weekly schedule which included themes and activities. I posted these schedules on the wall, so the kids knew what we were going to be doing on any given day. It seemed to help diffuse some of the chaos. |
03-19-2009, 06:54 PM | #2 |
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Join Date: Feb 2003
Location: Parts unknown.
Posts: 4,081
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Making the waffles is the easy part.
Trying to get them back in the SPONGE BOB SQUARE PANTS MEETS SPIDERMAN WITH WALL-E AND TICKETS TO DISNEY!! waffle box without miniFob seeing you is the hard part. :-) Clod - don't let the so-called support people get you down. You know what's best for your son and you know what your limits are. Do your best and ignore the know-it-alls. Your son needs you more than all those bozos put together and he's a lucky kid to have you taking care of all this. I know this has to be back-breakingly hard - I just hope you and mini-Fob are able to steal a couple moments during the day that can only happen between a mother and her son. Those times can make up for a lot.
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03-19-2009, 07:04 PM | #3 | |
UNDER CONDITIONAL MITIGATION
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Quote:
What I have available next is yet another kind of gluten-free baking mix and some yellow food coloring, because if they're bright freaking yellow that may help appease him--but I can't do anything about the fact that the only kind of home waffle iron I could find was either square, or hugely round like a Belgian waffle, and neither of those are the "right" shape. We did try the gluten-free diet for three days, and I was reduced to tears every single day. I just want proof it's going to be worth it, which is something they can't give me. |
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03-19-2009, 07:15 PM | #4 |
Only looks like a disaster tourist
Join Date: Feb 2007
Location: above 7,000 feet
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It's a lot like the climate change situation.
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03-19-2009, 08:36 PM | #5 |
I can hear my ears
Join Date: Oct 2003
Posts: 25,571
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cant even imagine....sorry if i came off wrong...
we think about you guys a lot....i hope you figure it out clobble
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This body holding me reminds me of my own mortality Embrace this moment, remember We are eternal, all this pain is an illusion ~MJKeenan |
03-19-2009, 08:42 PM | #6 |
I hear them call the tide
Join Date: Dec 2005
Location: Perpetual Chaos
Posts: 30,852
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Oh Fob......
You and yours are always welcome to come up to Michigan for a cooler week or so in the summer if a reasonably cheap (althoug distant) getaway would help
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The most difficult thing is the decision to act, the rest is merely tenacity Amelia Earhart |
03-19-2009, 08:45 PM | #7 |
I hear them call the tide
Join Date: Dec 2005
Location: Perpetual Chaos
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Can you do the gluten-free diet by not doing subsitute foods at all to start? using potatos in various forms for the "stodge" of the meal instead of bread, pasta etc? Does he like fries?
What does he like to eat?
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The most difficult thing is the decision to act, the rest is merely tenacity Amelia Earhart |
03-19-2009, 10:34 PM | #8 | ||
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Quote:
Quote:
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03-19-2009, 10:43 PM | #9 |
Come on, cat.
Join Date: Nov 2003
Location: general vicinity of Philadelphia area
Posts: 7,013
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My kids like these mac and chreese products. The penne is brown rice pasta.
Can you do goat cheese?
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03-20-2009, 07:07 AM | #10 | |
I hear them call the tide
Join Date: Dec 2005
Location: Perpetual Chaos
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Quote:
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The most difficult thing is the decision to act, the rest is merely tenacity Amelia Earhart |
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03-19-2009, 11:08 PM | #11 |
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Supposedly not, nothing with casein. The one substitute he has gotten used to is rice milk, so we're good for cereal at least. I'll try the mac & chreese things, thanks for the link.
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03-23-2009, 10:38 AM | #13 |
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Son of a bitch
My toddler got high this weekend.
We had a miscommunication with one of his Sunday School teachers--they rotate every two weeks, and while we'd had a long group email thread with all of them about his new diet, this particular one doesn't ever check her email and apparently was never following along at all. So this Sunday was her day, and she gave him cheddar goldfish crackers for snack. Two whole cups full, because of course after the first half-cup he demanded another one, and another, and after they finally cut him off at four servings he collapsed to the floor in a junkie rage... I knew as soon as I came to pick him up that something was wrong, because he was over in the corner spinning a toy car two inches from his face, and he hasn't done that in weeks. Anyway, it's been sorted out with that teacher now, and she was deeply apologetic when she found out what she'd inadvertently done. But in the meantime I've got my old nutter back for at least 3-4 days until it clears his system. I had to shut off the water to the kitchen sink at the valve, because he couldn't be persuaded away from the faucets and I was terrified he'd discover the little black water gun handle (who the hell uses that thing anyway? What a stupid feature.) Now he's finally moved on to watching Cars, just like the old days: Ah, hindsight. I'm eagerly awaiting the time when it becomes less bitter, and more funny. BUT! The silver lining is this event finally convinced Mr. Clod that the dairy thing is real. Before, he was just sort of taking my word for it, in the way that husbands don't question their wives when it comes to the children. But this, he saw with his own eyes. So now he's enthusiastically on board when I start questioning things like whether Minifob's skin lotion has dairy in it (it fucking DOES) instead of just nodding politely. And in other good news, I think Subsitute Waffle v. 5.0 (that's the new homemade baking mix with yellow food coloring added) has been deemed acceptable. We'll see if he changes his mind in the next few days, but he's eaten three of them so far. I think we finally have a dairy-free waffle solution, and just as a bonus it happens to be gluten-free too. |
03-23-2009, 10:57 AM | #14 |
polaroid of perfection
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Clod, you are wonderful.
As is your boy. I know people here think I hate the kinder, but if you ever make it over here, you are so welcome. And saying all that, can I just congratulate you for staying sane & not killing him? Said with love.
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03-23-2009, 11:03 AM | #15 |
barely disguised asshole, keeper of all that is holy.
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Posts: 23,401
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As a father of three - thats exactly how I feel. OMG - your patience absolutely amazes me - you deserve a crown and prizes and and and stuff.
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autism, food intolerance |
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