ALS, Lou Gehrig's Disease

[Tink]

Originally Posted by TheMercenary

Sorry to hear that BV! What is the chance Tink will get it?

V has asked that I post the response to this question.

There is a 50% chance that I will get this. Just because one may carry the gene does not mean that one will get the disease. It is devastating to watch your family die one-by-one. They have difficulty breathing, eating, swallowing, walking, talking, holding things. My mother was beside herself as she could no longer give her children and grandchildren hugs.

The gene that my family carries is a known familial gene. The mutation of the gene is evidently a very aggressive one. That is why no one has lived beyond a year from diagnosis. I hope she throws that statistic right out the window on its ass!

I LOVE to exercise! I've recently added a bit of running to my treadmill routine. Do I stop? Exercise speeds the progression. If I stop and never get this.....well. If I keep exercising and am going to get this......well. It's a crap shoot.

Right now, my sister is being extremely courageous and I applaud her. I don't like to think of the "what if's" for me. Is this the last Christmas, the last birthday we will share together? I hope not. For her, her husband and her children..