Let them eat cake!

[9th Engineer]

Rzkn, it doesn't matter how rare it is, if it's out there there's a name for it. What you are describing are symptoms which are isolated from each other, you would have to show that some common factor connects all of your symptoms for it to be a single 'condition'. The name for what you seem to have is 'Man with many painful injuries'.

[keryx]

Originally Posted by 9th Engineer

Rzkn, it doesn't matter how rare it is, if it's out there there's a name for it.

Not necessarily.

Whatever my dad picked up in Vietnam has yet to be identified and named. For 40+ years he's suffered from this. It has various symptoms that are treated as best as they can be, but no cure forthcoming.

Not to mention the unknown infection Mr Fargon got at the VA, unable to be cultured. Suspected to have been transmitted from one of his three room mates, all Vietnam vets.

If Rkzn says his condition does not have name, I am inclined to believe it.

[busterb]

Originally Posted by 9th Engineer

Rzkn, it doesn't matter how rare it is, if it's out there there's a name for it. What you are describing are symptoms which are isolated from each other, you would have to show that some common factor connects all of your symptoms for it to be a single 'condition'. The name for what you seem to have is 'Man with many painful injuries'.

Not so.Mike went to Mayo in Jacksonville and the DR told him, If I can't find it I can't fix it. After 3 days of test. WTF.

[Griff]

My friends son went without a diagnosis throughout his short life. I believe they named it after his autopsy. Genetic disorders don't always fit neatly into little boxes and folks don't generally have unlimited time and money to pursue a name. Ease their suffering now, work on the label later.