All I can say is HUGS BV. I'm so sorry for all concerned.
Have you contacted your local ALS org. chapter? They can be a huge help.
Before I worked for Make-A-Wish in AZ, I worked for another org. that shared offices with the local AZ chapter of ALS. They can help with a lot of equipment needs, cost savings, etc.
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Laugh and the world laughs with you; cry and the world laughs AT you.
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