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I'm not going to read back over more than 30 pages of posts (how long did this issue go on??) to find out things from before I really caught on to things around here, but it sounds like a vauge pattern is emerging again. Mari brings up an innocent enough topic and may have a good point (in this case it was substandard food being donated), but it manages to morph into something entirely different and almost always hostile about something directly or indirectly related to her.
Mari, I did PM you, check your messages. I'd at least like to know whatever background I can get before committing myself to any opinions. I can see a second trend developing secondary to Mari's influence as well, but I'm going to watch a little longer and see how it develops. |
with Danac and Ali on this one.
I have a RL friend in very much the same situation as the marichick, and like her, she is vilified and attacked whenever she posts on the boards (if your so poor, how come you can afford broadband etc...) Keep your chin up, mari...... some of us do care. |
The same situation? That's alot to judge from someone's text, communication over a board (even PMing) is never reliable. I see ALOT of holes in Mari's story and she's got some serious explaining to do to offset the fact that the math on her posts points to pathological scam artist rather than victim. That's what's sitting on the board, until I hear news that makes me reconsider I have no sympathy for this person.
(I've browsed a few more posts since last comment, that attitude is waning fast) |
TBH, nineth placed, I can't remember acknowledging that I valued your opinon in this or indeed any other matter.
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And I can't remember that ever having any effect on what I think and how I say it.
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Hyberbaric therapy sort of super oxygenates the blood system and can save cells that might otherwise have died. Orthodoc, sorry about the typo - I meant anoxia. My brain does that now - it creates new and amazing words. Sometimes I catch 'em and sometimes... Oh, well. Quote:
Dana, you're a dear! And so are you Aliantha, as well as that Cardigan guy. 9th, I'll PM you. I did NOT want to get into this big fight, I was just fed up with the diet the poor are expected to live on in my county. I didn't mean to start WWIII. Sure, I mention my life now and then. Everyone on the Cellar does from time to time. Consider me your correspondent from the other side of the looking glass - sometimes. Now let's go write a poem about Labrat's ass. ;) |
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Keeping your friend in your life despite her problems is your choice Aliantha. I neither condemn or salute you. Ignoring Mari, and those I know like her IRL is mine. I prefer to surround myself with people who, depite the gravest of situations, try to look at the good things they still have going for them and focus on that. I only have time/space in my life for so many people. I'd rather it be spent with positive ones. Am I a cold heartless bitch? That's for you to decide for yourself, and is entirely your opinion. |
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1:1000, Not such a bad ratio, methinks.
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But how many of those were of or about your ass? Hey, I'm just joshin' couldn't resist. :)
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You cannot know another's pain, limitations or how those things interact with their immediate surroundings. Each state, town; even, neighborhood is different. What it is like to sit in a room alone with no contact with new people for five months may make you have a different opinion about the "importance" or "priority" that an Internet connection as you lose your mind from loneliness and pain. Regardless, you just cannot know, and therefore are talking out of you ass if you throw that stone. If you don't like someone, fine, argue with them... Other than that, let us have a thread about how each of us spends all of our money and then we can bitch about how much each of us spends on XXX and how much so-&-so does not give... bla, bla, bla... She comes to us, sometimes, because her life is hard, sure, some of that is her doing, guess what, all of our hardships are a tiny fraction of what the world does to us and the rest being how we respond to it... Perhaps, so many jump on her because we see something of ourselves that we don't like and want to change... but it seems a lot easier to change it by trying to change someone else? Sorry for the rant and I am not saying that I agree with all she has said and done, I am saying it is not my place to judge her so openly for it without a modicum of support as part of it (I try not to at all, but my expectations are not that high yet on this stage on my Path). I care for you all, but I am going to take a break for a while talking about my situation. |
Everyone here has a right to post whatever they want (within the mod's/owners consent, of course). I am not asking anyone to stop posting. In fact, I think that is a very BAD idea. In general, talking about your situation to anyone who will listen is extremely good therapy for someone in emotional or physical pain. How other than by posting/talking can we find others in our situation so that we can share ways of coping with that situation?
I just think Mari blows her conditions out of proportion, and I have chosen not to pay attention to her. It's not a matter of liking or disliking her. It's about trust. I just don't trust her stories. Rkzenrage-I have read but not posted to your thread. I feel it would be an extreme waste to lose it, or for you to stop participating because it is a good resource for those of us who would like a view into what it is like for someone that has to go through what you are. The same goes for anyone posting about any life situation, divorce, death, job loss, marriage, pregnancy, what have you. Shit happens to all of us, self inflicted or not. What matters how you REACT to it. |
I never questioned anyone's "rights".
I may have, personally questioned what was right. There is no way for you to know how severe her condition is. That is no different than the ignorant shits that say to me "you don't look sick". |
:::giving up trying to explain myself:::
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I am not posting to this thread, anymore. Like Griff said, "been there, done that, and tore up the T-shirt. Some folks here like me, some are indifferent, and some think I'm making up fairy tales. I feel the same about various members here. BFD.
I tried to make peace with you, Labrat, but you aren't having any of it. You write a bunch of unkind things and then talk about attitude. Interesting. rkzenrage, I take a vacation from this place every so often, too. Do what's right for you. Frankly, I wouldn't mind erasing this entire thread of mine, myself. Glatt, I can post the police call page from my town's little paper from the week in question of the great road flare/dynamite fiasco, but that's old news, too. I really am that stupid about explosives, and I thank you all for yelling at me and wising me up. Lucky the damn things were just road flares, anyhow. Now, back to Labrat's ass. PS: Brianna, your ideas were certainly useful - let's see: Quote:
Ummm... I did have a watch like that. I took it off to reach down in a crevice to get my fix a flat when I had a flat tire one day. I forgot about the watch and it now resides forlornly somewhere near Keyenta. Those watches cost $50.00 at least at Wal-mart. I don't have $50.00. Have you checked GPS prices these days? Obviously not. As for not working to the best of my ability, how do you know what I'm trying to accomplish? I think that's an amusing statement coming from a former nurse who used to steal opiates from the hospital and now goes to school to get an English degree at tax payer expense, and whines about having to read Herrick and the like. You got off easy, girl, and you have NO right to point the finger at anyone else. |
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It's not that I am simply 'mean'--it's just that I don't buy it. At all. Money is tight/tight/tight? then don't take precious extra money to buy a pure-bred puppy and claim you needed companionship---Um, mongrels offer the same companionship, no? I could go on but I won't, it's fairly futile. But! i find it VERY interesting that mari did not (nor her familiar, tonchi) comment on my ideas for mari to live in "the real world"--they simply attacked me--no mention of the ideas. Classic. Classic Victim Mentality. I know mari has bread--if she wants to eat cake she should put forth some kind of effort--ANY effort at all would do. |
hey...what are y'all talkin' about in here?
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Cake?
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This is why I am backing off. I don't want to see the day where things I cannot prove are subjected to this kind of scrutiny.
It is the bane of the disabled... Like I said, we all hear it eventually... "you don't look sick". |
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wanna know what I think?
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Just went to a shopping village in NC and could go into a whopping four shops out of a hundred or more and could eat at a Blimpies and inside a hot dog shop out of all of the places to eat... not ONE restaurant out of all of them.
The ADA is a sham. I live this life... being the outsider, the one that is not thought of when plans are made, having to hear "why don't you just..." and this place used to be where I went as a refuse from that. This thread terrified me. If she had good and bad days, who are we to judge that? Who are we to know? I don't really care. (hit innocent bystanders?... people on meds should not drive) |
I have good days and bad days myself.
r--your predicament is v. different from mari's --you have a PHYSICAL impediment to access--mari cannot recall dates, places, math--UNLESS it is about her condition and then she holds all the cards. Funny--you'd think her condition would preclude new knowledge--in fact mari has said so--however she is very adept enlightening us all on CO poisoning--a thing that, BY HER OWN WORDS--precludes her from learning ANYTHING NEW. Case in point__she DID learn new things when she learned, to the nth degree, her own condition. Makes me call BS. |
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I understand your point... the whole thing/attitude just makes me very nervous.
I was not always this bad and have dealt with a lot of the same "arguments". |
be it physical or mental (i am a firm believer that a mental illness IS an illness, ya'll) I sympathize with those struggling to find meaning in their lives and to have a FULL life despite disability. I think mari's own, personal story is full o' holes. Yours, r, is not.
Wanna know how many disabled American's i've helped? about 35. In 1 and 1/2 years. I've NEVER, EVER seen a disabled ohioan -rc'ving disability bene;s--ever, ever have to depend on the food bank. If I DID--I would also know that the food banks in Ohio are plentiful and well-stocked 24/7--I would also know that church's the city 'round are MORE than willing to donate to causes----MORE than willing. Actually they are begging for families to help. America is a generous nation. We suffer from fraudulent claims----we get a bit leary. people on welfare? they are disadvantaged--535/mo. and about 200/00month food stamps. that's 735/mo.(assuming two in the household) WITHOUT A HOUSING VOUCHER OR GAS/ELECTRIC VOUCHER! mari forgets to tell us that she gets BOTH. |
Still fighting for SSI and my own Ins. company's disability... no fun. I paid for both, have been since I was fifteen.
I am a HUGE burden on my family. |
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if it quacks like a duck.... |
rkzen--I'm a specialist--I know how to score claims. My job as an occ. nurse was to try to deny claims..some claims just cannot be denied and other claims are too hairy to get into--easier to settle. PM me. As an occ health RN at GM AND AKSteel--I know what flies and what doesn't. You know that the average GM price of an auto is puffed up via three thou. b/c of ctd? (continuous truama disease)? Every time you buy a new GM auto you are subsidizing an elbow/wrist/shoulder CTD/surgery. With time off to heal. usual length --6 months. then, after said employee has been surgically fixed-90% come back with job-killing restrictions. You all expect GM to remain competitive after that? False claims have brought our production to it's knees. You wanna blame a senator for shipping jobs to China? Try blaming those who have fucked and sucked the system forever--
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People with cognitive disorders may be mobile, but they labor under burdens that those with physical handicaps do not. My son is, at present, being verbally and emotionally abused by his immediate supervisor, and I'm not real sure he isn't being deprived of tip money through theft and deception because of his inability to comprehend things that you and I take for granted.
As to the issue of how someone on a limited income spends their money, let me just say this: If you haven't had to modify your entire life, probably for the rest of your life, to try and subsist on a limited income, may I humbly suggest that you probably have absolutely no realistic idea of what it is like. To suggest that Mari shouldn't complain about difficulty obtaining decent food through charitable sources if she's got an Internet connection is patently ridiculous. Life is *not* about squeezing every damn cent until you dry up and blow away, but that is by God the way our society treats the disabled. If my son, or Mari, are expected to be even more isolated than his/her conditions cause them to be anyway, as they would be without Internet, or television, or telephone, or transportation, or pets...they'd be just about as well off dead. Life is about living, not surviving. People like Mari and Stephen are trying to do just that...live. Put on other people's shoes for a serious amount of time before you go around telling them how full of shit they are, my friends. Really. And, just for the record, although I like Mari just fine, despite not always buying her politics or concerns, my position on this is derived strictly from my (ongoing) experience trying to see to my son's welfare, given his very limited resources. In fact, I seriously fear for his ability to survive once myself, my family, and his pretty much worthless mother - are gone. |
els--i went from 50,000 year to 15,000/year. I'm still here.
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and I've never needed to go to a food bank--thank goddess.
perhaps mari isn't praying to the right god? thing is, els, people CAN make it. despite hardships or Absolutecan't do it-ships. even the least of us can contribute----I've a neice and a nephew who are CP--you think I or their parents feel they are doomed? Hardly. |
Mari and Stephen are surviving. And who the hell said anyone was giving up...or should give up? The issue isn't whether they will survive, at present. The issue is if they should shut up and like it, as I've been reading it.
Check back in a few years and see if Mari is still online, or if Stephen is still living independently and indoors. At this point, though, I would expect the opinon to go something like, "See, toldya you should have saved up." Sorry, but I see some very judgemental points of view being thrown out here, mostly by people who aren't in these circumstances. Speaking from the point of view as regards my son, the only way he is living above his means is due to things either provided outright or subsidized by me. He's luckier than Mari in this way. And trust me...my kid *wants* to earn more. But he's incapable of doing so. Utterly incapable. Anyone who wants to drop by and look at his humble possessions and learn how he got them and see what he does to maintain his "lifestyle" is more than welcome to check it out. In fact, more than welcome to *try* it for awhile. And, Bri...your current income, with tutition, child support/ADC/etc...is $15k? If not, how long did you have to subsist at that $15k level? Just curious, as that's a couple of thousand more than my kid makes right now with disability, food stamps and his job, after taxes and child support are taken out. |
els--my income is indeed 15,000/year. I used to bring down 50,000/year. I lived on 535/mo with 200/mo in food coupons for five months. I fed a 14-year old on 200/mo--that breaks down to 50/week for food for a teenage boy who measures 6'1" and 180 pounds. i have a sister who is raising two children who suffer from CP--a 14 year old girl and a 10 year old boy. Because I prodded them, the parents applied for bene's. it depends on mom and pop's income how much the children are entitled to. every year they submit their income to get an estimate for the two disabled children. both children suffer grand mal seizures, ADD, fine-motor disability and more. You think we've all forsaken them? No.
i've lived on 535/mo with 200/mo food stamps for six months including a 15 year old boy. It can be done. Currently i am living on 1600/mo. i was awarded a stipend b/c i won a scholarship--i applied and won it based on merit. sue me. PS-as a workingRN i made 2300/month. |
Girl, I'm not getting snippy with you about what you've done for yourself (quite the contrary, I remember at least one PM wherein I lauded you for your efforts), nor did I say anyone was abandoning anyone. I did say that a time would come when there wasn't someone around to take care of my kid. That might happen to your relatives, too, some day.
Screw it. I'm getting too defensive here. I guess I'll just leave it at "handicapped people deserve what happens to them if they aren't miserly" before I piss off a friend. |
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it sounds to me like you;re content with the deal you have worked out, and are happy with that lifestyle. that's great. i still have to pay my taxes, and they won't get any cheaper if you get a job. my only advice on this topic is that if you are unhappy with the product supplied by the food bank, let them know it by not patronizing it. maybe they'll go out of business, or a competitor will arrive and outshine them. then again, if you got too hungry, you could always eat a dick ;) |
ah...the Beauty of Marichiko--STAFF SPLITTING!
I've known this for from ever. I've dealt with loads of very deserving disabled folk--their biggest, brightest asset? their want to contribute--no matter how small. |
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the 'system' should help the helpless to engage in society. It's good for the mental health plus more. You wanna deprive good people the chance to contribute? talk to someone else. Lots of folk want to m atter...you can volunteer without loss of benes....or didn't you know that? |
I had the impression that if she made more than X, she'd lose all of the benefits altogether. If, in fact, you can earn what you want, but you give up SSDI dollars on an even scale, why not work? it'd be like a safety net, right?
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Elspode and rkzenrage, very eloquently put.
The system of capping anything you earn over your benefits is the system we use here too. I think people are allows to earn about £15 pound a week above. |
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I don't get the connection between what I said and what you said. My point was that if it is currently set up so that if you earn over a certain dollar amount you lose a large lump sum, then that actually discourages the recipient from earning money unless they can make enough to cover the entire SSDI payout and more. If, instead, the SSDI was decreased slowly as the recipient earned more, then every dollar they earned would reperesent a net increase in income, and there would be no point at which earning another dollar would be a net negative. |
I think everyone should be allowed a carte blanche---no matter what the crime. At least twice. Maybe three times
After that? I think it should be given. People here have rested on a given. Socialists? God, I admire you--you who have never, ever been exploited. you pure white souls. you gorgeous lovlies. |
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you quoted him
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ah. guilty as charged.
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I draw SS disability. By luck I paid enough in to get around $1200 each month before Medicare is taken out. Once I cursed because I worked construction and when you changed jobs they started taking it out again. So by my figures, after I pay bank, insurance and a few other things I have $599.83 bucks to pay city, which is gas, water, trash. Phone, is dsl, and video, cable. VA for meds. All that's left over I can piss away on food, beer, gas, repair house, any drugs and DR. bills. The tooth fairy and eye glasses. I have local. BTW, while waiting for this to happen I had damn little help from any Gov. For around 3 years.
If you have the dream that the benefits are the same for every state, you are wrong. If I was crazy enough to move to, say CA. I think I could get more money. If you move here from CA. you loose money. Walk a mile in someone else's shoes. Hey I'm happy as a pig in shit. Go Mari. :bitching: |
Sorry. I now remember what set that rant off. I sent off for the info on working while disabled. Because I was going nuts, hey it got my 1st computer. Anyway they said I could earn in a month what I could make in about 3 days, when able. So I'm going to drive to ,say the west coast and make 2k a week and get down and can't work, get kicked off and have to wait 3 years? Hell no. Now I don't even have a choice.
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The story of Aesop's life has more holes than a colander.
Does that make his parables less valuable for teaching problems and how (or how not) to deal with them? :smack: |
Someone said 'schizos' can't operate computers.
HELLO??!!!! Better put your brain in gear next time before you open your mouth. |
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Because of this, I'd suggest it's possible I've had a lot more interesting experiences than you may have had...that is of course if what you said is true and you only surround yourself with likeminded people. If you want to ignore someone on an internet site then go ahead and do so, but don't try and justify your actions with bullshit statements. Decision pending. |
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I don't, nor I doubt does anybody else, read everything on this site. there are threads i just never click on, because the topic doesn't interest me and there are threads I visit for awhile until they start pissing me off and then I dump then. If you see a mari post and when you go check it out, you think it's just the same old bullshit, and that annoys you, then go read something else. I just do not understand the need people have to expend energy on a thread they see as pointless and annoying. Then having baited the fuck out of Mari, they complain that she is always talking about her illness or income. Don't throw things at someone and not expect them to try and defend themselves, it's just unreasonable. Jesus H. Fucking Christ. It's so utterly disengenuous to needle someone into defence then round on them for that defence. And Bri what the fuck is all this about 'Schizophrenics can do this, schizophrenics can't do that?' How many tens of patients did you base that little gem on? That explains a lot about your attitude, you clearly think if someone doesn't fit your very (medically and psychiatrically unsound) narrow perception of what is meant by such disorders. No wonder you didn't stay in the field, my guess is you left because you sucked at it. |
To no body in particular.
Everyone has a sad story. No matter how large or small it's important for them to be understood.
Some of you are like me in that the only sad story is seeing threads like these. Everyone should be giving the benefit of the doubt. Especially on a message board. We only see on quarter of a person this way. There is enough misunderstanding in the world why add another layer of hurt. Quote:
My idea: Move to a big city and live downtown! Take public transportation. Get a bike. Just changing local to an urban district and eliminating the need for a car would easily add mucho money. I would absolutley hate to be stuck in a small town ( without money) for you would be at the mercy of the town yokels. ( kinda like here :p ) |
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I did not say I didn't have time for people less fortunate, or have a different world view, or are less fortunate. I said Quote:
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the polarization here is interesting. with topics like this, it becomes very clear just who the 'likeminded' people are. At least, to me it does.
Here's the thing: Those of you that are defending Marichiko feel like she's being unjustly attacked by bitter and cold people that are insensitive to her plight. Those of us who've had it up to here ^ with her, have heard it all before in various iterations of woah is meisms, and after 2+ years of it, she has changed nothing. Quote:
mari CHOOSES to live in an environment that provides very minimal support for those who cannot or will not do for themselves. She is obviously satisfied with her lot, and bitches mainly for attention. I believe that she is truly struggling financially. but, guess what? that's her fucking choice! she PLAINLY has the acumen and the education to work if she chose to. despite all of her excuses to the contrary, her very thoroughly researched reasons why she can;t work are, in direct conflict with her statements, evidence that she COULD. Not in the mountains of Colorado, maybe, But in say.....Denver, or Boulder or somewhere where there are companies that need employees. bottom line: she chooses her lifestyle. and then she bitches about it. I say tough shit, fuck you, get a job if you don't like being poor, or be happy with what you are GIVEN. cocks |
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Carry on. |
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I wasn't intending to involve myself in this discussion any further, as i believe it has become skewed towards the ridiculous and frankly nasty; however, i feel compelled to refute the constant assertions that anything Mari has written here bear any kind of evidence towards her ability to work, or lack thereof. In my work as a councillor, about ten per cent of my cases relate to social services and/or provisions. I have a regular queue of people for whom the proving of their disability is less than simple. Despite letters and reports from doctors and consultants, people are often refused on the grounds that they seemed alright/cogent/healthy/confident or articulate on the days they have had to interract with staff. The fact that these people are often choosing to visit the agency to deal with their claims on precisely those days when they are most able to cope with the process is rarely taken into account. The thing I find most sickening about this, and I find it strongly echoed on this board, is that those people are accounted as liars and malingerers and thereby forced into a position of (or in the case of marichiko taunted into) defending their condition.....defending a condition they most likely hate and fighting for their right to be recognised as sick/disabled. Psychologically, I cannot believe it is helpful for people who are labouring under an illness or disability which is controlling many, aspects of their life, to have to defend that illness or disability. |
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